Don’t be fooled by these jerks that I got.
I’m still, I’m still Jenny from the block.
Well Jenny from South East and I’m your Disability Liaison. The jerks to which I refer are my myoclonic seizures. I was diagnosed with temporal lobe epilepsy when I was 17 and had a bit of tough time getting my tonic clonic and absence seizures under control but did manage in my mid 20’s after a couple of years I asked to try to be weaned of meds and all went well for about a decade. Had a breakthrough seizure in 2012 and suddenly started having myoclonic seizures, which I didn’t know where even a thing, they’re brief muscle contractions, I throw things and fall over. Again I have gained control of T/C’s but the jerks not so much!
I’ve been walking a Pagan path since my mid 20’s I was solitary and then joined a (w)icca learning circle, which pretty spectacularly imploded. I vowed off ever playing with others. Alas, I do like a bit of ritual and I’ve a soft spot for a sabbatical chant. Initially I joined the Dover Moot, but alas lots of people moved away. I then joined the Kent Goddess Group (a women’s ceremonial group) and my personal practice was becoming more Hellenic Recon.
Eventually some of the Dover Moot people who had moved away moved to Folkestone (hooray). We founded Folkestone Pagan Circle and I have helped to facilitate a Pop-Up Temple, Open Beach Rituals, Moot and Red Tent. I have recently stood down as chair and was looking for a new challenge.
This was around the time of the first Pagan Disability Team Online Festival. Nature, abhorring vacuums as she does, I thought ‘That’s a marvellous idea’. I was called to contact the lovely Debi and offer my services to Disability Liaison for the South East. Debi said ‘There isn’t one, would you like the job?’
When Goddess calls who are we to refuse?!?
So why volunteer? What do I want to bring to this role? For me I think one of the hardest things about living with a disability or chronic illness is isolation. Not everyone wants to go to a Moot or be involved in group ceremony and it’s awesome to be a solitary practitioner. However, it is nice to have the choice, whether that is helping groups to think about making events and venues accessible or using technology to bring the Sabats to you. What I hope to do is include you too. I want you to feel a little more connected to your Pagan community. Please share your ideas on how we can make that happen.
Jenny Luddington is the Deputy Disabilities Manager and the District Liaison for South East region.